Support for families with a child who has a life threatening or terminal illness

Get help to manage everyday family life whist caring for a sick child and making the most of time together in the family home and local community.

You'll get expert, practical and emotional support from a Family Support Worker. 

Support can include:

• breaks for the sick child and siblings, which may include drop-in groups, family days, trips out or fun activities at home
• spending time with the ill child at hospital or home
• accompanying and supporting parents and their child during clinic and hospital visits or providing transport to hospital
• helping maintain normality in the home by working with and caring for siblings, to ensure usual activities are continued
• siblings support such as one-to-one sessions, getting to school, homework, regular sibling groups and school holiday events and activities
• practical support with household chores to help families manage day to day life
• emotional support
• end-of-life care and bereavement support.

Support is for families who have a child or young person up to the age of 18 with a life threatening or terminal condition. For example cancer, some neurological conditions, babies in neonatal intensive care.