Support network for families with undiagnosed genetic conditions

Become a member to join a support network for families of children and young adults with undiagnosed genetic conditions. 

Joining is free for any family in the UK with a child aged 0 to 25. As a member of SWAN UK you can:
  • make contact with other families who understand the challenges of raising a child with an undiagnosed genetic condition
  • go to free, fun whole-family events
  • access information and support through our online forums at any time
  • get their monthly and quarterly newsletters
Organisation: SWAN UK (syndromes without a name)

Suitable for

  • Ages 0 to 25
  • Physical disabilities

Cost

Free

How to book

  • Book online

Contact details

Suggest an edit if you see something out of date or incorrect.

We check and update services regularly but services and information may change.

Suggest an edit